Thursday, November 12, 2015

Your Basal Ganglia looks great!

Last Friday we went to the neurologist to get results from Curtis's MRI. I wasn't sure what to expect but I was honestly worried that she would tell us it was worse than we expected. The doctor came in and of course took forever to look at the images and read the results, those minutes were a little stressful. Then she said the best words ever, "your basal ganglia looks great!" The basal ganglia is the part of the brain that controls movement, emotion, and cognitive ability. This is the part of the brain that gets destroyed by Huntingtons disease. So this means that so far HD hasn't done damage to his brain yet! Praise God! All of your prayers are working! Now we get to keep working hard to protect his brain.
The only abnormality on the MRI was that he had iron deposits near the basal ganglia. Of course we had no idea what this meant and sadly our doctor didn't either so she pulled up trusty google to look it up. We have started to do our own research on it too and it apparently is normal for any type of neurological disease. No one really seems to know how it all correlates but it does seem to point to being another marker/symptom of HD. So the MRI results still seem to be consistent with him having HD.
We moved back to our home town this weekend so now we get to start figuring out the next steps. Our insurance has still not gotten a geneticist in our network so that we can get the official test done to be diagnosed. So now we are going to try to go through the VA or UCLA to get that done. He is looking for a job that will be much less stressful so we can continue working on keeping his brain healthy for many more years. I am going to be starting a Doula business so I can help support the family but still be able to spend time with the hubby and kiddos too.
The biggest prayer requests right now are that Curtis would find the right job and that we would be able to get medical insurance of some type when ours ends at the end of the month.
Thanks for taking the time to read our blog and pray for us, it makes our hearts so happy!
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5 comments:

  1. MelissaNovember 12, 2015 at 10:06 AM

    So thankful that the tests came back better than expected :-) Praise God

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  2. UnknownNovember 12, 2015 at 11:16 AM

    Thank you so much for sharing.. He and your family have been on my heart. I will continue to pray. So thankful the MRI came back good.

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  3. UnknownNovember 12, 2015 at 12:22 PM

    Thank you guys for the updates, Praying daily for Gods direction and comfort

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  4. W.E. WatsonNovember 12, 2015 at 3:35 PM

    Erin, are you guys able to get Cobra insurance through Curtis' former job?
    Judy and i will be praying for you and your family. I teach biology and have read and taught about HD for many years; if you would like input on something, i would be eager to help however i could. But prayer, as always, is the most important thing...

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  5. UnknownNovember 13, 2015 at 1:35 PM

    Thank you for taking the time to keep us all updated. I have been praying for all of you. I can't think of a kinder, gentler person to be a doula.

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